A close examination of the text of the bill reveals that most of the provisions included relate to training, setting up grants for qualified institutions to train specialists and health care providers. However, there is also a focus on integrated family training and support of community and family-based care including financial provisions for the training of parents. If this bill passes, this could lead to programs being set up at the federal and state levels to provide funding to families seeking further assistance and specialized training in how to support dependents on the autism spectrum. Most of the funding however, is not earmarked to be set aside until fiscal year 2011.
Grants, programs... I need to write a post detailing my DD Waiver nightmare, where I am not officially on a waitlist until a plan of care has been written by my case manager. My case manager, the only one in Northern Virginia who was accepting new clients six months ago when this all began, never wrote it and now the state is threatening to drop Jimmy. This case management company won't return my multiple phone calls. So DMAS sends me a list where the only other name in Northern Virginia who is accepting new clients... well, she isn't. So they tell me to call everyone else on the list who is full to see if I can get someone else to write this plan of care. I got someone who said yes, but now she hasn't called me back. I think I may finally have it straightened out with a third case management company, but it is beyond insane.
More bullshit hoops for parents to jump through instead of real care for our kids. Ridiculous. I am furious. This is a complete let down. For parents of autistic kids, this isn't reform. It's the same old crap.
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