Monday, January 30, 2012

Entering as strangers, leaving as family...

great article about the experience of changing ABA therapists coming to your home and the tremendous impact they have on everyone.

Sunday, January 29, 2012

What a week...

The US Department of Justice came to a settlement with Virginia on its care of the developmentally disabled.  I watched this issue closely as I had some limited involvement with the investigation on the waiver waitlists - it took me two years to get on the IFDDS waiver waitlist and I had to drive more than an hour away to do it.  Turns out that I got some misinformation, but this is a process that was fraught with it in a system that is woefully inefficient.  I don't know how long it will be before we get help - they are making 450 slots (the minimum amount) over the next ten years and we sit about 200 slots after that until his number is up.  But it was nice to be in a room in Richmond with so many advocates and families elated for the change.  I want to keep Jimmy near me, even as I grow older.  I don't want to see him in an institution.  His future is still hazy to me - I don't know what it will look like, but to not see an institution as the most likely option is somewhat of a relief.

I think this weekend is defined by the probable loss of a friendship of longstanding.  I love my friend dearly, but I have been hurt badly.  In large part, that is due to how I chose to take the slight.  That my sensitivity, my reaction, my issue.  But when you look at something and it starts to feel like a pattern... how many times do you live with the sting before it starts to burn?  I don't have much of a social life and have many more acquaintances than I do true friends.  I do not taking the thought of ending any relationship lightly.  I wish I had something more poetic or thoughtful to say, but... this sucks.