Thursday, January 31, 2008
Tomorrow I met with Jimmy's teacher to check his progress. He had a string of potty accidents last week, so I want to make sure that has been addressed.
Wednesday, January 30, 2008
"Unfortunately, the House Labor and Commerce Committee has decided more study is needed and has forwarded HB 83 to a commission to study the bill and provide recommendations for next year's session. I hope they will realize the error in the current insurance company interpretation of federal education law and recommend passage of the bill. I urge all of our delegates and senators to join Marshall in his efforts to level the playing field for children with disabilities."
So it isn't dead forever, just for this year. It could easily be studied to death, though. If you feel passionately, you should call your elected officials and urge them to help out kids like Jimmy.
Tuesday, January 29, 2008
Monday, January 28, 2008
From the Potomac News
"HB 83 Mandated insurance coverage for children.
Del. Jackson H. Miller, R-Manassas is a cosponsor of this bill.
It was killed by the House Commerce and Labor Committee and would have required insurance companies to provide coverage for habilitative services for children."
First, I can't believe the reporter left out that whole "autism" thing. Habilitative services for children with autism.
This proves yet again that most legislators in Richmond don't give a crap about kids with autism. If my past experience hold true, the business lobbyists went in there to speak on the bill, saying it would cost companies too much in premiums. Poof. Dead.
Sunday, January 27, 2008
Thursday, January 24, 2008
Wednesday, January 23, 2008
"It is exactly this desire to please that Myles believes may explain how a girl with autism could fool the experts, so to speak.
"We overtly teach social skills to girls," Myles said. "They are told not to get angry, they are told to be nice, they are told to share -- all of those behaviors."
Myles believes these social skills are not as ingrained in boys as they are in girls. "It's more appropriate, if you will, for a boy to have a tantrum and major meltdown than a girl," Myles said. "
This article is very interesting... I never thought of autism this way for girls, that we are socialized to overcompensate. The last paragraph goes to the stigma that still exists for all parents of children with autism, especially those who are among the highest functioning.
""Nightline" recently followed Kaeda around school and met a faculty member who was skeptical, suggesting that the children's challenges had to do with the way they were parented. Myles said that kind of reaction is "heartbreaking, and indicates a gross misunderstanding of autism spectrum disorders. And I'm not blaming that indiviudual staff member, but he or she doesn't understand.""
Brenda Myles is much more understanding than I am. Jimmy seems to be much lower functioning than these children, but for years autism has been equated to and dismissed as bad parenting. If anyone suggested that to me about my child or any other child with autism, like my son's classmates, they would catch hell from me. I am stunned that an educator working in this day and age would say that.
Sunday, January 20, 2008
Saturday, January 19, 2008
Thursday, January 17, 2008
Wednesday, January 16, 2008
Tuesday, January 15, 2008
Monday, January 14, 2008
|You Are Cookie Monster|
Sunday, January 13, 2008
Saturday, January 12, 2008
Wednesday, January 09, 2008
Tuesday, January 08, 2008
Monday, January 07, 2008
- 1 in 150 births
- 1 to 1.5 million Americans
- Fastest-growing developmental disability
- 10 - 17 % annual growth
- Growth comparison during the 1990s:
- U.S. population increase: 13%
- Disabilities increase: 16%
- Autism increase: 172%
- $90 billion annual cost
- 90% of costs are in adult services
- Cost of lifelong care can be reduced by 2/3 with early diagnosis and intervention
- In 10 years, the annual cost will be $200-400 billion
I know it is politics and what not, but I thank Senators Clinton, Edwards, and Obama for taking a stand (at least on paper) to help kids like my son. It means everything to me.
Maybe I am a little too political, but I love Jimmy. If you were in my shoes, you would be screaming too.
We had his evaluation today. I will post at more length when we get the full results. Suffices to say that he is not MR.
Sunday, January 06, 2008
Friday, January 04, 2008
First of all I am for strongly increased research on autism. The number of children in this country affected by autism is just staggering. [1 in every 150 children] Comprehensive and universal access to health care is part of the solution. I fought for increased funding in New Mexico for outreach, education, treatment and awareness. This is something that I have been talking about on the campaign trail everyday and it will be a priority in my administration.
"Cute little guy," Romney responded before launching into a monologue on topics including stem cell research and cloning — but not autism.
"I felt avoidance of the issue," Wessels said."
"Autism affects families from every walk of life. Sometimes I talk about the Two Americas – but when it comes to fighting for families affected by autism and autism spectrum disorders, we must come together as One America to deliver on our national promise – helping every child realize their full potential." -- John Edwards
Autism and autism spectrum disorders affect an astonishing 1 in 150 children. More children than ever before – a 700 percent increase over the last decade – are being classified as having an autism spectrum disorder. We need to learn more about why the number of children diagnosed with autism and autism spectrum disorders has been growing. We know that early intervention is often crucial to helping children with these diagnoses reach their full potential, but the education and health care resources needed to help them and their families are strained to capacity. For families, caring for a child with autism can be expensive and emotionally draining. While Congress took an important step last year by dedicating more than $900 million to address autism over the next five years, more can and must be done. [IDEAData, 2005; CDC, 2007]
John Edwards believes every child deserves the opportunity to reach his or her potential. Helping everyone reach personal independence and assume social responsibilities is a responsibility we all share. His Promise and Potential plan will:
- Guarantee quality affordable health care for families living with autism – ending insurance discrimination.
- Help unravel of mysteries of autism by issuing an all-hands-on-deck research challenge.
- Fund schools so they can provide essential services.
- Strengthen supports for families dealing with the diagnosis.
- Ensure a continuum of care with lifelong supportive services.
Thursday, January 03, 2008
More than anything, autism remains a profound mystery with a broad spectrum of effects on autistic individuals, their families, loved ones, the community, and education and health care systems. Obama believes that the government and our communities should work together to provide a helping hand to autistic individuals and their families."
This was the first search I have done on a candidate on this issue. I am pleased to see that he is addressing it as part of his healthcare policy. I am going to Google each candidate and see what they all have to say. Especially to a family living with autism, how a candidate sees addressing this issue is as important as any other policy issue.